Tuesday, December 23, 2008
Saturday, December 20, 2008
Managing Fibromyalgia - Improving Relationships
Thursday, December 11, 2008
Thursday, December 4, 2008
Wednesday, December 3, 2008
Tuesday, November 25, 2008
CFS is having a choice of two temptations and choosing the one that will get you home earlier.
You know you have CFS when you realize that caution is the only thing you care to exercise.
Don't worry about avoiding temptation. With CFS, it will avoid you.
You know you have CFS when you're sitting in a rocker and you can't get it started.
You know you have CFS when you don't care where your wife goes, just so you don't have to go along.
You know you have CFS when you wake up with that morning-after feeling, and you didn't do anything the night before.
Doctor to patient: "I have good news and bad news -- the good news is that you are not a hypochondriac."
You know you have CFS when you have to sit down to brush your teeth in the morning.
You know you have CFS when you become exhausted from the effort to blow out the candles on your birthday cake.
You know you have CFS when you have to take a nap because chewing your dinner wore you out.
You know you have CFS when you get up to change the TV channel and decide as long as you're up, you might as well go to bed.
You know you have CFS when one of the throw pillows on your bed is a hot-water bottle.
You know you have CFS when everything that works hurts, and what doesn't hurt doesn't work.
You know you have CFS when you reach the toilet, but forgot what you wanted to do.
You know you have CFS when you have to get rid of your dog; he kept trying to drag you to the yard to bury you.
You know you have CFS when Medicare states that you're too sick for their coverage.
You know you have CFS when everyone is happy to give you a ride because they don't want you behind the wheel.
You know you have CFS when a passing funeral procession pauses to see if you need a lift.
You know you have CFS when people are constantly putting a mirror under your nose while you nap to see if you're breathing.
You know you have CFS when at 25, your colleagues that are 15+ years your senior and have kids, manage to do more on the weekends than you.
You know you have CFS when you get the vacuum out because, by golly, today's the day your going to DO SOMETHING, and then you have to lay down and get hubby to put the stupid thing away. Unused.
You know you have CFS when you don't have to buy books anymore. You simply re-read the books you have because you can't remember what you've already read.You know you have CFS when you wear out your pajamas before you do your pantyhose
Sunday, November 23, 2008
Saturday, November 22, 2008
Wednesday, November 19, 2008
Sunday, November 16, 2008
If you're having trouble explaining what fibromyalgia is to your friends or family or they're still not getting it, I compiled this information from various sites. These are direct quotes from various articles. I didn't write any of this personally. I sent this to my family and amazingly, they all read it. It really helped them to understand this complex and varying illness.What is Fibromyalgia? Fibromyalgia is a relatively unknown illness, even though it affects between 3 and 6 million Americans every year. Fibromyalgia is a syndrome that causes widespread and chronic pain in your body. This pain is also accompanied by numerous other symptoms and often has a great impact on your freedom and enjoyment of life. Fibromyalgia syndrome seems to attack more women than men, with 80% of sufferers being female. Onset of this syndrome generally occurs during early adulthood or middle age and is characterized by symptoms that wax and wane over periods of time.Symptoms of FibromyalgiaFibromyalgia symptoms are painful and can be debilitating. Fibromyalgia attacks the muscles throughout your body, causing them to ache, burn, and twitch. If you are suffering from the syndrome, you probably feel achy all over, especially in the arms, lower back, shoulders and neck area. Fibromyalgia causes tingling in the fingers and toes, severe fatigue, headaches, and sleep problems. The syndrome is also associated with abdominal pain and gastrointestinal complications. Additionally, many suffers have to deal with anxiety and depression triggered by their fibromyalgia.Chronic muscular pain is just one facet of this syndrome; it runs much deeper than just sore and aching muscles or joints. Just living with gravity and our modern day stress can cause much of the soreness and muscle tension that most people experience. However, when we have the condition of fibromyalgia, or myofascial pain syndrome, all of the stress and tension is intensified ten-fold.The chronic pain can be regional, myofascial pain syndrome (in the connective tissue or muscles) or widespread fibromyalgia with overall aches and pains accompanied by neurological and other problems. The condition can be very severe and has many faces.Most have a sleep disorder called the alpha-EEG anomaly. This means that they don’t get to the deeper levels of sleep and they are constantly interrupted by awakening brain activity. Thus, when they wake up they feel that they didn’t get any rest and the body did not get a chance to recover. This condition creates added stress, which keeps them in the vicious cycle.Temperomandibular Joint Dysfunction Syndrome (TMJ) is connected with the headaches or face pain in 25-30% of FMS patients. Research indicates that as many as 90% of fibromyalgia patients may have jaw and facial tenderness that could produce the same symptoms of TMJ.Irritable Bowel Syndrome (IBS) It’s common for many of these women to have bowel problems, constipation or diarrhea. Frequent abdominal or chest pain is also not uncommon. These symptoms are found in 60% to 70% of fibromyalgia patients, according to the research, in addition to PMS and painful menstrual periods (dysmenorrhea).Other common symptoms include muscle numbness and or tingling sensations; muscle twitching; swollen extremities, dry skin or skin sensitivity, dry eyes and mouth; dizziness and impaired coordination. Often patients experience sensitivity to weather or wind, rain, and changes in temperature. Hormonal fluctuations (premenstrual and menopausal states), depression, anxiety and overexertion can all contribute to symptom flare-ups.There is currently no cure for fibromyalgia and treatments are also limited in their effectiveness. Generally, antidepressants, other neurological medications like anti-convulsants, muscle relaxants and pain medications are used to treat the symptoms of fibromyaligia. However, no treatment has been proven to work for a large group of patients with FM. This lack of effective fibromyalgia treatment is basically due to the minimal knowledge researchers have about the syndrome. No one is completely sure of the causes of the illness and thus no appropriate treatments for fibromyalgia have yet been found.
Thursday, November 13, 2008
Wednesday, November 12, 2008
Tuesday, November 11, 2008
Monday, November 10, 2008
Sunday, November 9, 2008
Today is a bad pain day for me. I feel like I have been hit by a truck. I guess that is the closest description that I can think of for what I am feeling right now along with the fatigue. There are so many symptoms associated with FMS. I have most of them. Not necessarily all at the same time-would'nt that be a day at the park. I suffer from all of the symptoms listed here plus some, although I really don't think that I have ADD, at least that I know of:) My "fibro fog" is gradually getting worse and I think it is the most noticeable to the people around me. I can't remember things and I completely go blank or lose my train of thought. It is so frustrating to forget such a simple word as "kitchen" and you have to describe it like "you know that room where you do the cooking?" This is all during a conversation and it happens way too often. This can really be embarrassing, especially around people you don't really know that well.
Today we had Jennifer and the family over for a cookout for Jennifer's birthday which was on Friday. It was a great day and so beautiful with the gorgeous color of the leaves and watching them as they fall and crunching on them as you walk. I just love this time of year. Anyway, I really had a nice time for I enjoy spending time with the family, I just wish I hadn't felt so bad today. I would have loved to be able to play with Payton maybe out in the leaves. I picked her up and I saw stars but as she hugged me tight I completely forgot about the pain even just for a few seconds, the joy that I feel with her is all worth it. I am very fortunate to have such a wonderful family. That is so important.