Wednesday, December 22, 2010
Our old word "comfort" did not originally mean ease, it meant "with fortitude, with courage." The ability to face a situation with courage regardless of the outcome does give a kind of comfort that is possible in no other way. This comfort or courage is not evoked by putting our confidence in a sure thing or in some guaranteed safety, but rather in some risk whose outcome is uncertain. The person who can face difficulties "with courage" will find that he is buttressed from within. Just as a soft balloon yields to the touch and a hard balloon resists outside pressure so one who has sufficient internal resistance can withstand forces that press in upon him. An ability to endure whatever happens "with fortitude, with courage" should enable us, in the root sense of the word, to have comfort.
From Moments of Meditation by Paul S. McElroy 1961
Wednesday, December 15, 2010
I have really tried to remain positive for almost a year regarding my fibromyalgia. I have refused to let it take over my life and control what I can and cannot do. As I have mentioned before in previous entries, my worst months for fibro flares have always been February, August and November. This year has been a strange one when it has come to the weather which usually plays a big role in my flare-ups. It is December 15th and I am having one of the worst days I can imagine. Actually the last several weeks have been miserable. Today though I am in such severe pain I just want to scream at the top of my lungs! I am having so much trouble typing this but I thought that I would "journal" today on here.
I wish I could describe it but I can't. Yes as usual, I feel like I have been hit by a train, but the weird sensations & pain in my arms, legs, shoulders, neck, etc. right now are so annoying that they are overpowering my every thought. I can't even watch the movie that is currently on. I can't even believe that I am able to even put a straight thought into what I am typing. Maybe I'm not. Maybe this makes no sense whatsoever. Maybe I'm just venting in my own way.
I really hate to complain & discuss my fibromyalgia with negativity because I know that all that does is bring me and the people around me down. I am trying so hard to fight it but right now the fibromyalgia is winning. I know it won't last forever. It comes and goes. The weather sucks! It's cold! We're supposed to be getting some kind of wintry mix tonight! UGH!!!!
I changed my blog so as not to concentrate on the fibromyalgia and try to make it a more positive escape. Today is not positive. That doesn't mean tomorrow will not be. I am still human and I will have my bad days. Yes I feel like complaining about it today because I am so frustrated.
The thing with FM is for instance, right now out of nowhere I get this sharp pain in my left knee that feelis like someone is stabbing it with a knife & twisting it around. It kind of just moves from one part of my body to the next.
I like to offer solutions and help and once again, positivity, but today is about me & my pain and I am going to whine about it! Althought I really don't think I can type much longer as I lay here on the sofa, miserably uncomfortable.
I think my rant is over. I know there is really no real content or valuable information in what I am typing but just knowing that I cannot always be perfect and happy and perky and yes, positive just makes me normal like everyone else.
I suffer for a reason. I sometimes pray that as I suffer in pain that I can take the pain of others away-if that makes any sense. It does to me. Even though I think like that I still am going to complain and say once in a while "It sucks to be me" even if it's just for a moment or an hour or a day, week, month or year. There are other people worse off than me and I should feel blessed and I do! Life really is great!
Feeling better now! :-)
Thursday, December 9, 2010
Wow- It sure has been a while since I posted so here I am! Yay! Only thing is I am actually sharing something written by someone else. So much for my creativity :) I read this & wanted to share with my friends who suffer from chronic pain.
The following was written by Paul Gileno from the INvisible Project. In this he also quotes from Michele Gargan, Psyd.
Yep it's a long one. Hopefully I will be back on real soon with some good stuff for ya!
Here is Paul's message:
I think during the holiday time people who have pain and or illness actually have a very hard time. I feel this way for many reasons. One reason is I notice it in myself, I am in more pain, I get frustrated and I get depressed quicker. Holiday times become very busy and in turn we try and do more to stay "normal" at least I do: maybe bake some cookies, or travel to someones house, or spend more time on your feet, get less rest, we spend time worrying about others, and we put pressure on ourselves. Living in pain can be draining as it is and then you add some of these to our days and it is a recipe for disaster. The pain is ignored because we are with family or friends for that momemt and we don't want to loose that moment of joy, because that moment of joy is so powerful and uplifting yet at the same time when those moments are over we have higher pain and all the baggage pain brings. Truthfully we need to balance all of this but not only during the holidays but always. We can have those moments of joy all the time, the problem is for me still to this day is I find myself doing all or nothing. When I feel good, I do to much and when I feel bad I do nothing. It is true I preach to everyone to find a balance each day, I have posted and printed articles written by Doctors on how to find that balance. In all honesty I have tried and found some balance but not enough and during the holidays it seems to just disappear. I want everyone to know your not alone in this and do not be hard on yourself. We are all in this together and we understand all of this and together we can help one another through all of this. BELOW IS THE ARTICLE FROM DR. GARGAN. Hoping you have a low pain and high spirits holiday season. - Paul
Pain and Activity: Use It or Lose It
The human body is meant to move. Yet a person who experiences intense, persistent pain will probably move less and less over time. He or she is also likely to develop a number of “pain behaviors” such lying down for long periods, using unusual postures to brace against the pain, or favoring one side of the body over another when moving. After a while, these pain behaviors take on a life of their own and actually add to the pain.
Long periods of immobility disrupt the body’s pain sensing mechanisms because pain perception relies on feedback from normal muscle activity, particularly the larger muscle groups of the body. Avoidance of activity under stimulates the large sensory nerves and results in more pain when movement is resumed. The habitual use of unusual postures results in secondary pain in other areas of the body as certain muscle groups go into chronic spasm while other muscle groups atrophy from lack of use. So, rather than decreasing pain by avoiding certain patterns of movement, a person is actually increasing his or her pain as well as creating new pain.
A common pattern that I see in my pain patients is a burst of activity on a good day followed by several days of increased pain and immobility. As much as I preach consistently moderate activity, my patients habitually try to get everything done when they feel good. But when they do this, they get nothing at all done in the following two or three days. A prudent and effective pattern to follow is to do the approximately the same amount of physical activity each day. On “bad” pain days, you will have to push yourself, while on “good” days you will have to hold yourself back. If you do this, you will see that you get the same amount done as when you do a burst on Monday and nothing on Tuesday and Wednesday. If you do a little each day, you will get the same amount done without misery on Tuesday and Wednesday.
The following are some suggested techniques you can use to maximize your functioning:
Keep an activity log for a two-week period. Write down everything you do including quantity (how many dishes you washed) and how long you spent at it. You will probably be surprised at how much you do accomplish even though it feels to you as if you are doing little or nothing. Keeping this type of log will make you more aware of your patterns as well as help you set reasonable expectations. Challenge the artificial deadlines you set for yourself. What does it matter if the whole task is completed in one hour or one day, or in three hours or three days? How perfect does the work have to be? Learn to say, “That’s good enough.”
Breathe while you move. Be aware of using your breath to support physical exertion instead of holding your breath against pain. Also be aware of the amount of energy you are using to accomplish a task as well as the quality of your movement. Replace short, quick, intense movements with longer, slower, lighter movements. Elongate the muscles when dusting, scouring, or reaching, and slow down to allow a full range of motion.
Take frequent breaks. Every twenty minutes or so, change positions, change activity, or just rest. It may take you longer to do what you used to do in the blink of an eye. So what? It is important to learn to pace yourself.
Schedule a rest period in the middle of the morning and the middle of the afternoon. A half-hour is usually effective, but some people take an hour or longer. If you have to nap, go ahead. But many people find that just relaxing, listening to music, taking a bath, daydreaming, or meditating is effective in extending their ability to function throughout the day. Go back to your activity log and find the natural breaks where you can insert rest periods. If you think there is no time to rest, you are trying to accomplish too much.
Make conscious transitions between tasks. For example, if you are cooking dinner, take a few seconds to breathe and stretch between peeling the potatoes and molding the meat loaf. This allows you to release muscle tension and adjust your posture as well as tune into your physical effort in order to maintain a steady, easy pace.
Put some type of regular physical exercise into your life. Don’t deprive your whole body of exercise and fitness because part of you is in pain. Yoga is excellent for persons with pain because it increases flexibility and strength while focusing on breathing to support movement. Most yoga instructors will modify the poses to fit your needs. Walking and swimming are also good activities to keep the whole body healthy.
Explore new recreational activities. If you used to play soccer or go skydiving for fun, you have to find new pursuits. Music, painting, gardening, creative writing, and handicrafts do not offer the same physical thrills, but they are relaxing and rewarding. Make time for fun even if you have not completed all the chores that need to be done.
If you have a chronic pain condition, you have to accept that much of your life has changed permanently. This does not mean your life is over. It just means that you can’t do things the way you used to before the pain set in. If you set realistic goals, learn to pace yourself, maintain a moderate level of daily activity, and engage in pleasurable pursuits, you will be able to have a full life.
Michele Gargan, Psyd